Type 1 diabetes registry in developing countries: Perspective from India

Banshi Saboo; Anju Virmani; Sanjay Kalra; Dhruvi Hasnani; Ashok Kumar Das; Shaukat Sadikot; Jayprakash Sai; Tanya Rangwala; Karnik Patel

doi:10.4103/jod.jod_12_18

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Year : 2018 \| Volume : 9 \| Issue : 3 \| Page : 78-80

Type 1 diabetes registry in developing countries: Perspective from India Banshi Saboo¹, Anju Virmani², Sanjay Kalra³, Dhruvi Hasnani¹, Ashok Kumar Das⁴, Shaukat Sadikot⁵, Jayprakash Sai⁶, Tanya Rangwala¹, Karnik Patel¹ ¹ Department of Diabetology, Diacare-Diabetes Care and Hormone Clinic, Ahmedabad, Gujarat, India ² Department of Diabetology, Max, Pentamed and Sunderlal Jain Hospitals, New Delhi, India ³ Department of Diabetology, Bharti Research Institute of Diabetes and Endocrinology, Karnal, Haryana, India ⁴ Department of Diabetology, Pondicherry Institute of Medical Science, Puducherry, India ⁵ Department of Diabetology, Jaslok Hospital and Research Center, Mumbai, Maharashtra, India ⁶ Department of Diabetology, Apollo Sugar Clinic, Hyderabad, Telangana, India Correspondence Address: Dr. Banshi Saboo Diacare-Diabetes Care and Hormone Clinic, 1 and 2 Gandhi Park Society, Near Nehru Nagar Cross Road, Ambawadi, Ahmedabad - 380 015, Gujarat India Source of Support: None, Conflict of Interest: None DOI: 10.4103/jod.jod_12_18

India has been a prey to rising tide of non-communicable diseases. It is becoming increasingly important to evolve strategies to ensure effective prevention, diagnosis and treatment of this rising burden. Available Indian data reveal different opinions regarding type 1 diabetes (T1D). Such variation in data leads to uncertainty in healthcare planning and management. This ununiformity in data and the absence of protocol make a task challenging. Many patients consult non-specialists and even doctors from different streams. On the part of the patients, the diagnostic and screening testing are a great burden. T1D registry is of great relevance to India. It helps in ensuring good clinical practice and errors. Endocrinologists and paediatricians can audit themselves using such a registry. The overall goal is to improve population health. The objective is to reduce morbidity and mortality while maximising the cost-effectiveness. Such a registry helps in fund allocation and healthcare planning and contributes to the formulation of pragmatic management guidelines. However, healthcare professionals are reluctant to share their data. This may be due to fear of being audited by peers or regulators and record maintenance. We must work towards creating a national registry of T1D. This should involve multiple centres across the country, as it will help enhance awareness about T1D and improve standard of care. The results of which can be used to advocate for greater allocation of resources to T1D care. An effective registry will help children claim their rightful place under the sun.



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